The EDS Lass
Welcome! The EDS Lass is where Kate (ie The EDS Lass), a 30-something researcher, writes articles and posts honestly about living with EDS (Ehlers-Danlos Syndrome) (the good, the bad and the ugly!).
The EDS Lass has articles on relevant topics (including the law and human rights in medicine, healthcare systems, EDS and other conditions), blog posts on life with EDS, sharing life and adventures, practical tips and tricks managing EDS, as well as blog posts documenting Kate’s medical journey.
ARTICLES
Articles written on relevant topics including the law and human rights in medicine, healthcare systems, EDS and other conditions and more. View all articles.
Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Visceroptosis; Internal Prolapse
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Colon;
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
PoTS
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
LIFE WITH EDS
Blog posts sharing life and adventures, as well as practical tips and tricks managing EDS. View all posts.
Helsinki, Finland
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
# Diary – 18 May 2025
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Paris
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Celebrating ❤
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
EDS &… Plans
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
MEDICAL JOURNEY
Blog posts documenting the medical journey, continuing the fight for healthcare. View all posts.
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant…
GI surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up,…
Visceroptosis & mesenteric ischemia diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
POTS diagnosed! (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications…
EDS diagnosed! (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in…
ALL POSTS
All articles and posts on this site, in one place. View all.
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
Helsinki, Finland
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant…
EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
❤ Thank you for reading & SHOUT OUT TO EVERYONE living with conditions
There is much to enjoy, but life can (and is) often hard… additionally so with condition(s). Many of us live to the max, coping and compromising… its not easy. Here’s to everyone living with conditions and life struggles; you are not alone.
The EDS Lass 