The EDS Lass
Welcome! The EDS Lass is where Kate (ie The EDS Lass), a researcher, writes articles and posts about living with EDS (Ehlers-Danlos Syndrome), human rights in healthcare, life and travel, and documenting her medical journey.
The EDS Lass has articles on relevant topics (including the law and human rights in medicine, healthcare systems, EDS and other conditions), blog posts on life with EDS, sharing life and adventures, practical tips and tricks managing EDS, lifestlye posts about travel, home and recipies, as well as blog posts documenting Kate’s medical journey.
ARTICLES
Articles written on relevant topics including the law and human rights in medicine, healthcare systems, EDS and other conditions and more. View all articles.
Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Visceroptosis; Internal Prolapse
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Colon;
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
PoTS
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
LIFE WITH EDS
Blog posts sharing life and adventures with EDS, as well as practical tips and tricks managing EDS. View all posts.
EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
# Diary – 18 May 2025
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Celebrating ❤
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
EDS &… Plans
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
# Diary – 8 August 2020
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
EDS &… Food
I have a great love of food; old favorites and new recipes. I have studied nutrition. Despite EDS complications, I…
LIFESTYLE
Blog posts sharing lifestyle content, including travel, home and recipies. View all posts.
Recipe: Pesto Pasta
This vibrant vegan pesto pasta is fresh, flavorful, and incredibly easy to make. With walnuts, cashew nuts and pine nuts,…
Helsinki, Finland
I was fortunate to have time to explore Helsinki. The city and nearby islands are beautiful, giving a mix of…
Paris
Paris is such a lovely city to wonder around, in various districts such as the 9th and 18th district, and…
Paris (Amélie sets)
I visited locations in the brilliant film Amélie, including the cafe, the grocery store, the carousel, Basilique du Sacré-Cœur, the…
Mallorca
Mallorca is gorgeous. The waters were clear turquoise, white sand and bright terracotta coloured rock at the coves. We visited…
Recipe: Peanut Butter Noodles
This dish is one of my very favorite meals and is a regular go-tos. It is delicous and healthy. With…
MEDICAL JOURNEY
Blog posts documenting the medical journey, covering pre-diagnosis to present, fighting for appropriate healthcare. View all posts.
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant…
GI surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up,…
Visceroptosis & mesenteric ischemia diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
POTS diagnosed! (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications…
EDS diagnosed! (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in…
ALL POSTS
All articles and posts on this site, in one place. View all.
Recipe: Pesto Pasta
This vibrant vegan pesto pasta is fresh, flavorful, and incredibly easy to make. With walnuts, cashew nuts and pine nuts,…
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
Helsinki, Finland
I was fortunate to have time to explore Helsinki. The city and nearby islands are beautiful, giving a mix of…
Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags…
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant…
❤ Thank you for reading & SHOUT OUT TO EVERYONE living with conditions
There is much to enjoy, but life can (and is) often hard… additionally so with condition(s). Many of us live to the max, coping and compromising… its not easy. Here’s to everyone living with conditions and life struggles; you are not alone.
The EDS Lass 