The EDS Lass
ABOUT KATE
I’m Kate, aka The EDS Lass. I’m a thirty-something Scottish lass currently living in London. I have a background in research, interest in law and human rights, aversion to injustice, love of learning, conversation, travel and the best food… and have EDS (Ehlers Danlos Syndrome); a connective tissue condition causing hypermobility and instability in my the body.
Getting the correct diagnosis, accessing appropriate healthcare and living with the condition have been very challenging, however the experience has also deepened my resilience, sharpened my advocacy and interest in human rights and law, and strengthened my conviction that everyone deserves informed, case-specfic healthcare. I want to provide research and articles as resources, as well as share lived experiences that provide an insight.
Despite the issues, I have continued to live and enjoy many elements of life, like travel, home and food, which I also share. My household includes Eliza, the sweetest ‘wobbly’ rescue cat, affectionally nicknamed as ‘EDS Eliza’, who you will see appear in my posts.
ABOUT THE BLOG
The EDS Lass was started as a place to write honestly about living with Ehlers-Danlos Syndrome and publish relevant articles. The EDS Lass has four categories;
Articles – I write articles on relevant topics including the law and human rights in medicine, women’s health, EDS and other conditions, barriers and issues in the healthcare system, and more
Life with EDS – sharing life and adventures, practical tips and tricks managing EDS.
Lifestyle – posts about travel, home and recipies.
Medical journey – documenting my medical journey, continuing the fight for healthcare, in posts
ABOUT KATE’S EDS
I was first suspected of having EDS at 14, but the diagnosis was wrongly denied. I was formally diagnosed with EDS six years ago, as an adult. The diagnosis made sense of many health issues and symptoms! I had experienced years of misdiagnosis and medical gaslighting prior to my diagnoses, and, due to poor awareness of EDS within medicine, continue to have a difficulties accessing appropriate healthcare. This is, unfortunately, a common experience of people with EDS. EDS can be an invisible disability; you can’t tell to look at me, however, EDS has causde internal laxity, causing internal tissues and organs to be more mobile, which causes anatomical (structural) gastro-intestinal issues as well as vascular issues.
Despite the challenges, I approach life with determination and humour, and a good dose of Scottish grit, supported by my amazing family 💛
Thanks for visiting my site!
The EDS Lass
The EDS Lass 