All articles and posts. Articles (the law and human rights in medicine, women’s health, EDS and other conditions, barriers and issues in the healthcare system, and more), blog posts sharing life with EDS (life and adventures with EDS, as well as practical tips and tricks managing EDS), blog posts sharing lifestlye content (posts including travel, home and recipies), and blog posts documenting the medical journey (posts pre- and post-diagnosis, continuing the fight for healthcare).
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey.
Posts
- Articles
- Travel
- Home
- Recipies
- EDS & …
- Diary entries
- Medical
TheEDSLass Categories
Tags
Article Croatia Diagnosis Diagnosis denied Diary EDS EDS and … Exploring Finland Food France health Healthcare System Issues hEDS Helsinki Holiday Home human-rights Hvar Ileostomy Infection informaion informed-consent Island law Lido Lifestyle Medical Mesenteric Ischemia NHS Failure Nice Paris PoTS Recipe Rest rights Sea Slovenia Sun Surgery Swimming travel Traveling Undiagnosed infection Visceroptosis
| M | T | W | T | F | S | S |
|---|---|---|---|---|---|---|
| 1 | 2 | 3 | 4 | 5 | ||
| 6 | 7 | 8 | 9 | 10 | 11 | 12 |
| 13 | 14 | 15 | 16 | 17 | 18 | 19 |
| 20 | 21 | 22 | 23 | 24 | 25 | 26 |
| 27 | 28 | 29 | 30 | |||
EDS &… Being Misunderstood
Being or feeling misunderstood is an inevitable part of life. For those of us with conditions, there are many ways to be misunderstood. Being part…
Keep reading
# Diary – 12 February 2026; Home
I felt very EDS-y, so I am having a home day. I am staying home and the making the most of it; I stayed in…
Keep reading
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
Keep reading
EDS &… Plans
One of the most signigicant life-impcting things I have found very tricky and frustrating is the difficulty in planning, with a condition which is unpredictable.…
Keep reading
EDS &… Food
EDS can impact the GI system and effect food intake. I have a number of symptomatic structural issues. Despite this, I remain a ‘foodie’, though…
Keep reading
Accessing Your Records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
Human Rights in Healthcare
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
Celebrating ❤
I loved the fun, sunny day on the beach with family, having a pinic and paddling, celebrating the completion of my masters degree with distinction!
Keep reading
Seeking an Ileostomy…
I am seeking surgery to resolve the effects of structural and vascular issues (visceroptosis and mesenteric ischemia) which causes ‘loaded’ colon and significant symptoms.
Keep reading
# Diary – 27 August 2024; Paris
I am in Paris, enjoying exploring in the city in the sun. I have visited different areas of Paris, enjoying the artistic market and visiting…
Keep reading
Thank You O: Our Animal Friends
Our animal friends are fantastic; we are lucky to know them and share our homes with them. Thank you to O, who is the most…
Keep reading
# Diary – 16 August 2024; Helsinki
I am in Helsinki, the beautiful captial of Finland.I am enjoying exploring Helsinki so much. Today, I enjoyed a light lunch and swim at Allas…
Keep reading
Visceroptosis (Internal Collapse)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
EDS &… Movement
Movement is generally good for health, while EDS can cause discomfort, pain and fatigue. This can feel counterintuative to movement. Like many, I have tried…
Keep reading
Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
Postural Tachycardia Syndrome (PoTS)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
Ehlers Danlos Syndrome (EDS)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS…
Keep reading
Colon & Stomach Surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up, and my stomach was stitched…
Keep reading
Visceroptosis & Mesenteric Ischemia Diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
Keep reading
Undiagnosed Infection & EDS Fatigue (2021)
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
Keep reading
POTS Diagnosed (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
Keep reading
EDS & … Living Well
Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following…
Keep reading
EDS Diagnosed (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in childhood and early adulthood.
Keep reading
Fighting for Diagnoses
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer…
Keep reading
Lung Collapse
When I was twenty, my lung collapsed. Spontaneous pneumothorax are serious. Medical staff told me it was a panic attack.
Keep reading
EDS Suspected in Adolescence
I was close to an early EDS diagnosis when I was a child. However, it was wrongly denied.
Keep reading
# Diary – 22 August 2022; Local Market
Sunday was a rather EDS-y day, and therefore, a relaxed one. I viisted our local market, a typical London weekend pop up with bakery and…
Keep reading
.
The EDS Lass 