A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
Tag Archives: Healthcare System Issues
Undiagnosed Infection & EDS Fatigue (2021)
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
Fighting for Diagnoses
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer and for healthcare.
Lung Collapse
When I was twenty, my lung collapsed. Spontaneous pneumothorax are serious. Medical staff told me it was a panic attack.
EDS Suspected in Adolescence
I was close to an early EDS diagnosis when I was a child. However, it was wrongly denied.
The EDS Lass 