Being or feeling misunderstood is an inevitable part of life. For those of us with conditions, there are many ways to be misunderstood. Being part of the chronic illness community can be fantastic; we have many shared experiences.
Author Archives: theedslass
Recipe: Pesto Pasta
This vibrant vegan pesto pasta is fresh, flavorful, and incredibly easy to make. With walnuts, cashew nuts and pine nuts, fresh ingredients including basil and lemon, and tangy parmesan vegan cheese, its nutritious and tasty.
# Diary – 12 February 2026; Home
I felt very EDS-y, so I am having a home day. I am staying home and the making the most of it; I stayed in bed for almost all of the morning, then had a slow day, watching good tv, reading and slowly making some tasty food!
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
EDS &… Plans
One of the most signigicant life-impcting things I have found very tricky and frustrating is the difficulty in planning, with a condition which is unpredictable. At times it can feel like damned if you do (make plans), damned if you don’t (make plans).
EDS &… Food
EDS can impact the GI system and effect food intake. I have a number of symptomatic structural issues. Despite this, I remain a ‘foodie’, though GI symptoms can be significant.
Accessing Your Records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS TheEDSLass Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every momentContinue reading “Accessing Your Records; Subject Access Requests”
Human Rights in Healthcare
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey. RECENT POSTS TheEDSLass Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every momentContinue reading “Human Rights in Healthcare”
Celebrating <3
I loved the fun, sunny day on the beach with family, having a pinic and paddling, celebrating the completion of my masters degree with distinction!
Seeking an Ileostomy…
I am seeking surgery to resolve the effects of structural and vascular issues (visceroptosis and mesenteric ischemia) which causes ‘loaded’ colon and significant symptoms.
Helsinki, Finland
I was fortunate to have time to explore Helsinki. The city and nearby islands are beautiful, giving a mix of urban and nature to enjoy and explore. The exploring, food, outdoor swimming asn sauna at Allas Pool and boat trips to Lonna were fantastic!
Paris, France
Paris is such a lovely city to wonder around, in various districts such as the 9th and 18th district, and by the Seine. I enjoyed brunch under the Eiffel Tower, dinner on a boat on the Seine as the sun set and visiting art and antiwue markets.
Paris (Amélie sets)
I visited locations in the brilliant film Amélie, including the cafe, the grocery store, the carousel, Basilique du Sacré-Cœur, the canal and a train station and photo booth, which was truely magical!
# Diary – 27 August 2024; Paris
I am in Paris, enjoying exploring in the city in the sun. I have visited different areas of Paris, enjoying the artistic market and visiting the Two Windmills cafe in Amélie (which was incredible!). Today, I had bunch at the Eiffel Tower.
Thank You O: Our Animal Friends
Our animal friends are fantastic; we are lucky to know them and share our homes with them. Thank you to O, who is the most wonderful friend.
The EDS Lass 