A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
Tag Archives: EDS
Helsinki, Finland
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Helsinki, Finland”
Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Accessing your medical records; Subject Access Requests”
Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Human rights in healthcare”
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant symptoms.
EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “EDS &… Movement”
# Diary – 18 May 2025
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “# Diary – 18 May 2025”
Paris
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Paris”
Celebrating <3
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Celebrating <3”
GI surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up, and my stomach was stitched up (gastopexys).
EDS &… Plans
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “EDS &… Plans”
# Diary – 8 August 2020
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “# Diary – 8 August 2020”
Croatia
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Croatia”
Visceroptosis; Internal Prolapse
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Visceroptosis; Internal Prolapse”
Visceroptosis & mesenteric ischemia diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
The EDS Lass 