Life with EDS – The EDS Lass

EDS &… Being Misunderstood

Being or feeling misunderstood is an inevitable part of life. For those of us with conditions, there are many ways to be misunderstood. Being part of the chronic illness community can be fantastic; we have many shared experiences.

# Diary – 12 February 2026; Home

I felt very EDS-y, so I am having a home day. I am staying home and the making the most of it; I stayed in bed for almost all of the morning, then had a slow day, watching good tv, reading and slowly making some tasty food!

EDS &… Plans

One of the most signigicant life-impcting things I have found very tricky and frustrating is the difficulty in planning, with a condition which is unpredictable. At times it can feel like damned if you do (make plans), damned if you don’t (make plans).

EDS &… Food

EDS can impact the GI system and effect food intake. I have a number of symptomatic structural issues. Despite this, I remain a ‘foodie’, though GI symptoms can be significant.

Celebrating <3

I loved the fun, sunny day on the beach with family, having a pinic and paddling, celebrating the completion of my masters degree with distinction!

# Diary – 27 August 2024; Paris

I am in Paris, enjoying exploring in the city in the sun. I have visited different areas of Paris, enjoying the artistic market and visiting the Two Windmills cafe in Amélie (which was incredible!). Today, I had bunch at the Eiffel Tower.

Thank You O: Our Animal Friends

Our animal friends are fantastic; we are lucky to know them and share our homes with them. Thank you to O, who is the most wonderful friend.

# Diary – 16 August 2024; Helsinki

I am in Helsinki, the beautiful captial of Finland.I am enjoying exploring Helsinki so much. Today, I enjoyed a light lunch and swim at Allas Pools, then a boat ride. I love water and boats, as well as exploring new places.

EDS &… Movement

Movement is generally good for health, while EDS can cause discomfort, pain and fatigue. This can feel counterintuative to movement. Like many, I have tried to work out how to approach movement.

EDS & … Living Well

Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following are my thoughts of living well with EDS.

# Diary – 22 August 2022; Local Market

Sunday was a rather EDS-y day, and therefore, a relaxed one. I viisted our local market, a typical London weekend pop up with bakery and fresh foods, snack and meals, vintage clothing, art and gifts.