Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
Tag Archives: hEDS
Undiagnosed Infection & EDS Fatigue (2021)
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
POTS Diagnosed (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
EDS & … Living Well
Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following are my thoughts of living well with EDS.
EDS Diagnosed (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in childhood and early adulthood.
Fighting for Diagnoses
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer and for healthcare.
Lung Collapse
When I was twenty, my lung collapsed. Spontaneous pneumothorax are serious. Medical staff told me it was a panic attack.
EDS Suspected in Adolescence
I was close to an early EDS diagnosis when I was a child. However, it was wrongly denied.
# Diary – 22 August 2022; Local Market
Sunday was a rather EDS-y day, and therefore, a relaxed one. I viisted our local market, a typical London weekend pop up with bakery and fresh foods, snack and meals, vintage clothing, art and gifts.
The EDS Lass 