The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and her medical journey.
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After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
I had read about PoTS in April 2020, prior to EDS being raised (again). I had been struck with how exact my symptoms were. Months later, this made sense! I was very ‘PoTS-y’!
Like many, I had been told been misdiagnosed with ‘anxiety’. I had previously been told I ‘had anxiety’, when in fact, the issue was physiological.
PoTS UK notes that “PoTS is often misdiagnosed. Mean time to diagnosis in the UK from symptom onset is 7 years” and “Up to 85% of POTS patients are told that their symptoms are “all in their head” and given psychiatric labels of anxiety and depression“.
I remain grateful to the consultant, who was so proactive, thorough, caring and helpful.
The EDS Lass 