
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey.
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Movement is symoltaniously generally good for our bodies, while EDS can cause discomfort, pain and fatigue, which can feel counterintuative to movement. Like many aspects of living, and looking to live as well as possible with EDS, I have, like many, tried to work out how to approach and balance my body’s wish for movement and what movement is not great for me.
Movement
I was delighted to find Jeannie and The Zebra Club. If you have not heard about her of her platform and app, I highly recommend having a look! https://www.thezebra.club/. She focuses on positive movement for the EDS and hypermobile person.
I loved, over the years, pilates, swimming (I LOVE being in water), walking and was an occassional member of the gym. After being particularly unwell with extreme fatgue, I was able to return to some exercise, which I am lucky to enjoy again.
Rest & Movement
Both rest and movement are important (and will mean different things to different poeple). I have previously, when I was particularly unwell, did not yet have a diagnosis and had been told to rest, become deconditioned. This in turn had a negative effect.
I have had to work out, over years, post EDS diagnosis and through various effects of EDS, find the right amount of rest and movement.
For rest, I have made home as comfortable and as lovely a space to spend time in as possible.
