All articles and posts. Articles (on relevant topics including the law and human rights in medicine, women’s health, navigating the healthcare system, EDS and other conditions and more), blog posts sharing life with EDS (adventures, as well as practical tips and tricks managing EDS) and blog posts documenting the medical journey, continuing the fight for healthcare.
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey.
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art EDS Exploring health hEDS Holiday Home human-rights Ileostomy Infection informaion informed-consent law life lifestyle Medical Mesenteric Ischemia PoTS Rest rights Sun Surgery travel Undiagnosed infection Visceroptosis
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Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
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Helsinki, Finland
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Accessing your medical records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Human rights in healthcare
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant symptoms.
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EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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# Diary – 18 May 2025
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Paris
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Celebrating ❤
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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GI surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up, and my stomach was stitched…
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EDS &… Plans
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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# Diary – 8 August 2020
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Croatia
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Visceroptosis; Internal Prolapse
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Visceroptosis & mesenteric ischemia diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
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EDS &… Food
I have a great love of food; old favorites and new recipes. I have studied nutrition. Despite EDS complications, I remain a foodie.
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Colon;
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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# Diary – 13 April 2024
Sunday was a rather EDS-y day, and therefore, a relaxed one. I viisted our local market, a typical London weekend pop up with bakery and…
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Mallorca
Mallorca is gorgeous. The waters were clear turquoise, white sand and bright terracotta coloured rock at the coves. We visited beaches and coves, swimming with…
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PoTS
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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POTS diagnosed! (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
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EDS and all that mess
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to…
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EDS diagnosed! (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in childhood and early adulthood.
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Living well with EDS
Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following…
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Fighting for diagnosis…
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer…
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Undiagnosed infection & EDS
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
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Lung collapse
When I was twenty, my lung collapsed. Spontaneous pneumothorax are serious. Medical staff told me it was a panic attack.
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EDS suspected in adolescence
I was close to an early EDS diagnosis when I was a child. However, it was wrongly denied.
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Sardinia
Sardina was beautiful. We stayed at a friend’s property on the east side, enjoying visits to coves, beaches and towns. The clear water and pale…
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The EDS Lass 