A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept updated.
Tag Archives: health
Seeking an ileostomy…
I am seeking surgery to resolve the effects of structural/anatomical and vascular issues (visceroptosis and mesenteric ischemia) which causes significant symptoms.
EDS &… Movement
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “EDS &… Movement”
Celebrating <3
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Celebrating <3”
GI surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up, and my stomach was stitched up (gastopexys).
EDS &… Plans
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “EDS &… Plans”
# Diary – 8 August 2020
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “# Diary – 8 August 2020”
Visceroptosis & mesenteric ischemia diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
EDS &… Food
I have a great love of food; old favorites and new recipes. I have studied nutrition. Despite EDS complications, I remain a foodie.
Colon;
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Colon;”
POTS diagnosed! (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
EDS diagnosed! (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in childhood and early adulthood.
Living well with EDS
Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following are my thoughts of living well with EDS.
Fighting for diagnosis…
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer and for healthcare.
Undiagnosed infection & EDS
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
The EDS Lass 