I have a great love of food; old favorites and new recipes. I have studied nutrition. Despite EDS complications, I remain a foodie.
Tag Archives: hEDS
Colon;
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Colon;”
Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “Informed Consent”
# Diary – 13 April 2024
Sunday was a rather EDS-y day, and therefore, a relaxed one. I viisted our local market, a typical London weekend pop up with bakery and fresh foods, snack and meals, vintage clothing, art and gifts.
Mallorca
Mallorca is gorgeous. The waters were clear turquoise, white sand and bright terracotta coloured rock at the coves. We visited beaches and coves, swimming with fish. Our hotel was fantastic.
POTS diagnosed! (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications to help.
EDS and all that mess
The EDS Lass writes about life with EDS, articles on relevant topics and her medical journey. RECENT POSTS Categories Tags This is holding text to show text. Writing about a world of limitless possibilities, where the journey is as exhilarating as the destination, and where every moment is an opportunity to make your mark onContinue reading “EDS and all that mess”
EDS diagnosed! (2020)
I was formally diagnosed with hEDS in 2020. The diagnosis made sense of my symptoms, as well as experiences in childhood and early adulthood.
Living well with EDS
Living with EDS can be tricky at best. After diagnosis, I put a lot of thought into how to approach life with EDS. The following are my thoughts of living well with EDS.
Fighting for diagnosis…
Like many patients, I have had to fight for a diagnosis. I only now have my diagnosis after being failed and flighting for an answer and for healthcare.
Undiagnosed infection & EDS
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
Lung collapse
When I was twenty, my lung collapsed. Spontaneous pneumothorax are serious. Medical staff told me it was a panic attack.
EDS suspected in adolescence
I was close to an early EDS diagnosis when I was a child. However, it was wrongly denied.
Sardinia
Sardina was beautiful. We stayed at a friend’s property on the east side, enjoying visits to coves, beaches and towns. The clear water and pale sands were gorgeous
The EDS Lass 